Saturday, May 28, 2022

Already I am 68 years old. My parents made it into their 80s. I have found the reason I keep chugging along.

I never knew that there was a thing called SETH, until I read a book left at my work station in college.

As I get deeper into SETH, I am learning a lot about my inner self, or what I used to call my HIGHER SELF. Not sure I believe everything about it, but the part about controlling our lives rings true.

I have outlived everybody who ever trashed me. Sadly, I have also outlived anyone my age and older who has ever loved me. My children use me as a model for themselves and their grandchildren, however.

My first neurologist told me I had willed myself past the first crisis, and I generally have willed myself along ever since.

But Old Age brings new challenges. I have been hospitalized for systemic infection, started as a UTI. Fortunately, the Covid Crisis made the hospital kick me out as soon as they possibly could.

It is dangerous to ignore my health now, but I have daughters who monitor me, whether I like it not. I also wear an old Fitbit, and a V.Alert should I need it to call the kids. 

BTW, and LOL. I was stricken with the debilitating illness after bedtime, leaving me upstairs; I was too ill to get to the first floor. 

LOL again. I personally wired my home with Simplisafe and put sensors on all the doors. The EMTs had to call the police and fire department to break into my home to rescue me. 

Since I had been sick for hours, I was surprised to see that the entire neighborhood was watching as I came out the front door. The last thing I remember was noting the blue sky, morning sun--and all my neighbors. Then I passed out.

Final LOL. The EMTs couldn't get any info from me. Fortunately, I wear a Medic Alert and they tore the bracelet apart to get at the attached tag. Note to self: let the darned thing jangle: stitching it down tight is no help to First Responders!

My daughters and I were mortified. Hence the V.Alert . It notifies the kids first, then the EMTs

Just a suggestion for those who insist on living at home.

Like me.


Monday, November 05, 2018

Word of the day Big Pharma

Okay, that is really two words.

I just had a rather disheartening experience with BP.

Starting with what seemed suspiciously like a kidney stone, it resolved itself for one day in a bowlful of blood.

Okay, the kidney stone was gone, but the very next day, my bladder was so swollen and sore, that I could not sleep.  Up and down for the bathroom, and a ton of pain killers.

Stupidly, I guessed that it must have been the stone, and let it go another day.  Four days since the bleeding, with me taking those little red pills that turn the urine a bright orange, I could take no more and ran to the urgent care facility.

All our local doctors are too busy seeing healthy people on wellness visits to take a real sickness.  There are not slots for medical reasons.

I am now on a brand new drug that is an antibiotic.  Only an antibiotic, as I learned with I stopped the little OTC's for discomfort. 

Doctors love all the shiny new drugs that are shoved at them by their Big Pharma pushers.

Brand new drug, and a full day later, I am still in discomfort.  Back to the OTC for pain.  Not to mention only black and dark underwear and slacks.

Watch out for NITROFURANTN, or MICROBID.  It is bad enough to have MS, and recurrent UTI's, but incontinence creates one more  trouble.  I warned the doctor, but apparently the words Multiple Sclerosis meant little to her.

Saturday, November 03, 2018

Word of the day: Incontinence

If you are new to incontinence caused by MS, you will want to take note:

  • Never go anywhere outside the home without protection in place.

  • Never buy period protection instead.  I have a bad memory of a trip to a local restaurant where my sister gave me a period pad.

  • The bulky pads may hide well, but if your leakage is major, they don't work well enough.  Trust me on this.

  • Sometimes a cranky bladder really means that you need to empty your  bowels.  Better listen.

  • If you must self-catheterize, use a fresh one each time, or disinfect the catheter before you put it away WHERE IT CAN FULLY DRY.

  • Bladder infections are your worst enemy.  Stay home and take those little pills that turn your urine orange or blue.
  • Blue bladder infection pills can affect your eye color.  They are prescription.

A bladder infection is no joke, but it is even more unfunny when a MSer has one.

Tuesday, November 29, 2016

Free kindle book from JJ Leander for Advent!


In honor of the days leading up to His birth on Christmas Night, MEN SHALL DREAM will be offered FREE, so that you can enjoy my reverent and rather down-to-earth retelling of the event. Check on Amazon under the name JJ Leander or the title MEN SHALL DREAM  for your free kindle copy.

 December 5-9!

Monday, September 19, 2016

Two cleaning machines you must have

1--oreck xl, with or without hepa bags.

This is the lightest vacuum I've ever found.  The bags, even the cheaper, non-hepa ones, help filter the dust a lot more than bag-less anything.

Warning, the suction is impressive, but bothersome on those sticky, muggy days, when it causes more drag.

2--Dyson V6 Hepa

Handheld vacuum for cleaning up on furniture and walls, window sills, etc.  Very lightweight and extremely well set up for simple cleaning of filters and canister.  Cordless with three speeds, according to your suction needs.

Warning, when they say 6 minutes on the highest setting, they aren't kidding.  The lowest setting is enough for 16 minutes and seems to be enough for the amount of energy I can bring to any job these days.

Warning again.  The ad that shows them emptying the canister again and again is true, especially for those of us who fill our house with pets of varying fur length.

Prices:  The Oreck usually advertises at about US$300, but I found my latest one at Big Lots for $99.  US$299 is the current sale price on the Dyson cordless.  I went through Paypal, and got a bunch of attachments for free, most of them not really necessary.

Both Oreck and Dyson offer payment plans.

Pricey?  Yes, but lightweight and manageable, even if using a cane or walker.

Thursday, October 15, 2015

Now what?

This time last year I was recovering from ulcers and bleeding hemorrhoids.  I needed to take time to rest and recover, while still coping with all the changes wrought by the conditions.

I also needed to lose weight gained during a difficult summer of gut pain.

This did not happen.  In fact, in the springtime, I had the opportunity to hire dog walkers.  Two little girls came around to ask if we had a dog.  I said yes, but I walked her myself.

Then I realized that was a sort of lie.  I was walking Sarah, but not nearly enough for a dog.  Her growing belly confirmed this.

I called the kids' parents and arranged for the both of them to walk my dog.  I paid a tad more then they asked, in hopes that they would continue coming.

They not only came, but they were escorted by a parent, who saw to it that their girls were not exploited or in danger.  On top of that, they often brought siblings, because my Sarah gets balky when her routine is interrupted.  She had preferences, and they had security needs.

Well, I got rid of the worst of the excess pounds by cutting calories.  Yesterday, the walkers informed me that next week would be their last of the year.  I want to get them a little present to thank them.

They were not always prompt, and didn't call to let me know, but for elementary school kids, I thought they did pretty well.

The proof?  Well, Somebody has to walk Sarah this winter.  No other kids are coming forward, because Daylight Savings Time will make the streets dark and dangerous.  For little kids.

For a grown woman, it is time to step up and take the leash.