Friday, February 02, 2007

Now what?

This week I lost my local Copaxone supplier and my neurologist.

The neurologist simply vanished, the way that neurologists do, here in Upstate New York. I was told that it is just too hard to work ethically here. People come from all over the country to scam our Disability System. They bring lawyers to help them.

May they roast in Hell from one Eternity to the next. That means that those of us who really need doctors can't get them when we need them.

My drugstore informed me that I cannot get Copaxone from them anymore. I must order from out of state. So far, I am having no luck. At least I haven't heard back from the one listed as my new supplier. They informed me that they were not what the Insurance designates them to be. Why doesn't anyone want to supply Copaxone?

Already I am having problems. Apparently the drug was working, because I am having very painful spasms in my arms and legs, and the fatigue is becoming almost unbearable.

But I expect we will work out something soon.

Little Pond


Daniel Kirkdorffer said...

This is unbelievable to read. Do you have insurance? Are they dictating your care?

Was your neurologist affiliated with a hospital.

I'm obviously even more thankful that my situation is normal, although my Copaxone was not one of the preferred drugs and I had to make a case through my MS specialist (which was accepted) in order to get a year long prescription.

pb said...

Our insurance is Blue PPO and is wonderful. Copay is only $20.00. Copaxone costs over $1000.00 per month. I believe we are covered to well over a million.

The providers are the trouble. Not to worry, though. Guthrie in Sayre will provide this quarter's supply. Then we will go through the mail (and online) for future refills.

Relief is expected to arrive Tuesday. I will be spazzy and crampy until then, but warmth and exercise should alleviate most of it. Thanks for your concern.